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From Despair to Discovery: AI Technology Fuels New Treatment for Young Girl’s Unique Genetic Disorder

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Aria is a 3 year old girl living with a unique version of mitochondrial disease, caused by a defective gene called LONP1. Faced with losing their child, her parents have developed cureLONP1.com to raise awareness and funds in order to discover treatments. 

Devon, UK, 21st June 2024, ZEX PR WIREAlthough estimates vary, mitochondrial disease affects approx. 1 in 5000 people. Aria was born with a mutation in one of her copies of the LONP1 gene which was spontaneous and not inherited, called de novo. Her parents were told that only 2 other children in the global record appear with a similar mutation of LONP1 and they had not survived till their second birthday. Mitochondrial disease has no cure and is life limiting. 

Aria’s parents launched the website www.curelonp1.com in an attempt to raise funds for vital research and treatment discovery as they are in a race against time as often children like Aria don’t survive long. 

Parent led research and treatment discovery is the new normal, when the patient group is so small. In Aria’s case it is just her, described as N=1. Traditionally, drug companies only target large cohorts which offer a return on their investment in research and development. 

Her parents explain that they are super excited to partner with Unravel Biosciences, a Harvard spinout founded by Dr Richard Novak. Unravel offer a bespoke drug repurposing screen which is powered by AI machine learning technology, originally developed by the Wyss Institute for Biologically Inspired Engineering. 

Their extensive knowledge spans a range of fields, such as computational drug discovery, innovative animal models, automated drug screening, and entrepreneurship. This diverse expertise is crucial in creating a new paradigm for drug development that lowers costs and reduces risks.

The family need donations in order to access this program which promises to fast track potential drug discovery from known compounds and FDA approved drugs which the AI can model against Aria’s specific gene mutation. 

Unravel is just one of the programs Aria’s parents hope to employ if they reach their fund raising targets. 

You can discover more about Aria and her cure journey over at www.curelonp1.com. If you are inspired to help Aria find treatment, you can donate if you can and share her story. 

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Bitboard Coin Announces First Beta Service Launch After Development Completion

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Mahe, Seychelles, 23rd Oct 2024 – Bitboard (BB) Coin has completed the development of its core services and launched a beta service on its own test network, Testnet, before its official launch on the Polygon Network. The beta service, accessible at w.bitboard.in, is open for anyone to test. Various tests are planned to provide a more refined service by the official launch in early 2025, including making the beta test service publicly available.

Users can vote and stake using the following public wallet address:
Test public wallet address 12-word passphrase: *remove person dismiss dial flush pull predict disease casual head novel hood*

Sending more than five coins and voting more than five times is prohibited. To participate in voting, select BB in the public wallet, choose the transfer menu, and then select login at the bottom.

About Bitboard (BB) Coin
Bitboard (BB) Coin is an innovative project that combines blockchain technology with the entertainment industry and fandom culture, offering a new experience to fans worldwide. BB Coin goes beyond the typical functions of cryptocurrency by providing a unique platform where fans can interact with their favorite stars and receive rewards. 

Bitboard (BB) Coin was listed on the MEXC exchange on September 17, 2024, allowing users worldwide to trade it. This listing is expected to enhance BB Coin’s liquidity and recognition, marking a significant milestone for its global market expansion.

Fandom-Based Voting System
Bitboard Coin provides a new entertainment experience for both existing cryptocurrency users and the general public, even those unfamiliar with cryptocurrencies. Fans can vote for their favorite stars using BB Coin, and the coins used for voting can be reclaimed along with profits. This increases fan engagement and maximizes the utility of the coin.
Fans can vote for their favorite stars using BB Coin, and the coins used for voting are not consumed, allowing them to be reclaimed along with profits at any time. Additionally, fans can track the real-time rankings of stars through the “Bitboard Chart,” which displays live voting results.

Reward Mechanism
Fans can earn profits based on the ranking of the stars they vote for. The higher the ranking, the greater the profits, encouraging active participation. This reward structure emphasizes the role of fans not only as consumers but also as participants who can earn real rewards.

Global Fandom Connection
Bitboard focuses on building a global fandom ecosystem that connects fans worldwide. This platform allows fans to communicate across borders, share creative works, and get closer to their favorite stars. Fans can use BB Coin to create and expand their own digital fandom space in the global fandom world.

To learn more about Bitboard Coin, visit: https://bitboard.top/

Media Contact

Organization: Bitboard Coin

Contact Person: Hoon Lee

Website: https://bitboard.top/

Email: Send Email

City: Mahe

Country: Seychelles

Release Id: 23102418821

The post Bitboard Coin Announces First Beta Service Launch After Development Completion appeared on King Newswire. It is provided by a third-party content provider. King Newswire makes no warranties or representations in connection with it.

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Kazakhstan has been selected as a Top Country within Lonely Planet’s Best in Travel 2025 list

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Astana, October 23, 2024 — Lonely Planet, a leading international travel media, has named Kazakhstan as one of the best countries to visit in its annual Best in Travel 2025 rankings.

Each year, Lonely Planet’s experts carefully select the destinations based on recommendations from travelers, staff, writers, and other industry professionals. In 2025, Kazakhstan was chosen for its rich history, diverse landscapes, and unique cultural heritage, setting it apart from other countries.

Nitya Chambers, Senior Vice President of Content and Executive Editor at Lonely Planet, noted: “Best in Travel 2025 is the latest edition of Lonely Planet’s annual love letter to the world. While mindful of our responsibilities and impact as travelers, we’re proud of the destinations, journeys and experiences featured here, and are excited to share the local expertise and insight at the heart of these recommendations. Wherever you are in the world, we’re confident Best in Travel brings fresh inspiration for the year ahead.”

Yerzhan Yerkinbayev, Vice-minister of Tourism and Sports of the Republic of Kazakhstan welcomed this recognition, stating: “Kazakhstan’s inclusion in Lonely Planet’s Best in Travel 2025 highlights the country’s growing appeal as a travel destination and opens new opportunities for promoting its unique cultural and natural heritage on the global stage. Kazakhstan, with its bold approach, continues to develop sustainable tourism. We are committed to offering visitors authentic experiences that showcase the true essence of Kazakhstan’s heritage.”

Kazakhstan, which earned a place on this prestigious list, is described as a country where ancient traditions blend with modernity, offering something unique for every visitor. In the Lonely Planet publications, it states: “Kazakhstan is not just a place to visit; it’s a world to enter, a journey to undertake and a story to become a part of, with ghosts from the Silk Road whispering across the vast steppes that surround Kazakhstan’s cities still uncrowded by tourists.” Make modern Astana, which is the capital of the country, your starting point for a Kazakh adventure, and then roam the rough, wild mountains and steppe in Burabay resort, visiting ancient trading towns as Turkistan, dive into Caspian Sea and complete your journey in Almaty, gastronomy hotspot of Central Asia”.

Best in Travel is a landmark event for the global travel community, showcasing the most exciting and inspiring destinations for exploration. In 2025, the annual ranking celebrates its 15th edition, with a focus on countries and regions that offer unique experiences and demonstrate a commitment to sustainable tourism principles.

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BYDFi to List GOAT Token, Exclusive Rewards for New Traders

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BYDFi, one of Forbes’ top 10 Crypto Exchanges, has announced the listing of Goatseus Maximus (GOAT) .

Celebrating this new listing, BYDFi is offering exclusive, limited-time rewards to both new and existing traders: share 2,000 USDT bonus + 1,000 GOAT!

Full details about these rewards and how to qualify are available on [official announcement].

What is Goatseus Maximus (GOAT)?

Goatseus Maximus (GOAT), the first meme coin on the Solana blockchain managed by an artificial intelligence known as “Truth of Terminal,” is breaking new ground in the world of digital assets. With a significant investment from Marc Andreessen(co-founder of a16z), GOAT has gained notable backing that highlights its potential to reshape the digital economy. The token is currently trading at $0.4316/ token with an impressive market capitalization of $432,79M. Despite its recent launch in the crypto market just a few days ago, Goatseus Maximus has quickly become the talk of the crypto town. One reason is that its coin price has surged 10,000 times in the past five days.

About BYDFi

Established in 2020, BYDFi is a top-tier crypto exchange recognized by Forbes and trusted by millions of users worldwide. Endorsed by CoinMarketCap and CoinGecko, it is known for its professionalism, innovation, and exceptional security. The platform offers more than 600 cryptocurrencies for spot trading and advanced options like 200x leverage on perpetual contracts. BYDFi prioritizes user security, provides 0% trading fees, and facilitates easy crypto purchases in partnership with Banxa, Transak, and Mercury. Its wide range of trading tools enhances the trading experience and makes BYDFi an ideal choice for crypto traders worldwide.

Contact:

BYDFi Media Manager

Chloe@bydfi.com

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Disclaimer: The views, suggestions, and opinions expressed here are the sole responsibility of the experts. No Digi Observer journalist was involved in the writing and production of this article.

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